Parenting Young Children (PYC) for parents with intellectual and developmental disabilities: parents' experiences of the support program's methodology
Research on how parents with intellectual and developmental disabilities perceive the Parenting Young Children (PTC) support program for the development of parenting skills is scarce. The study explored parents' experiences of PYC's methodology.
Physiological synchrony during meaningful moments of interaction: an exploratory study
The idiosyncratic ways of communication of people with profound intellectual disabilities complicate meaningful interactions between them and support staff. A physiological explication of their interplay may help to better understand meaningful contact.
Predictors of popularity among students with intellectual disabilities: The role of prosocial and antisocial behaviours
Little attention has been given to the relationship between popularity and social behaviour among students with intellectual disabilities in special needs schools. Based on resource control theory and findings among typically developing students, we expected popularity predictors to include both prosocial and antisocial behaviours.
How can we support people with profound intellectual and multiple disabilities in enhancing their self-determination? A scoping review
Despite an increasing recognition of the capacity of people with profound intellectual and multiple disabilities to make decisions and act accordingly, parents and professionals lack a sufficient understanding of the concept of self-determination for people with significant disabilities.
Communication and feeding skills in Rett syndrome: Case report
Rett syndrome (RTT) is a neurodevelopmental condition that causes regression of previously acquired abilities after normal development. RTT symptoms affect communication and feeding skills, which may have serious consequences for individuals with RTT. Essential aspects of their daily care include feeding and language intervention.
Individualised funding schemes for people with intellectual disabilities: A systematic review
A shift to individualised funding for persons with disabilities, promises greater autonomy for the individual. The extent that this has been achieved for people with intellectual disabilities is unclear. This review sought to synthesise the evidence on the outcomes of individualised funding for people with mild to moderate intellectual disabilities.
Physical activity mentoring programs for people with intellectual and developmental disabilities: A scoping review
Physical activity and mentorship programs provide several benefits for people with intellectual and developmental disabilities. This article seeks to provide guidelines for the development of mentoring interventions to support physical activity for this group of people.
Interventions to increase cervical screening rates for women with intellectual and developmental disabilities: a scoping review
Women with intellectual and developmental disabilities face barriers to cervical screening. This scoping review charts the literature on interventions designed to improve cervical screening receipt and knowledge in this population. A systematic search of Embase (Elsevier), PubMed.gov, CINHAL (EBSCO), and Scopus (Elsevier) yielded 199 results, six of which met the inclusion criteria of women aged 21-65 years with intellectual and developmental disabilities, intervention studies, and outcomes of cervical screen receipt or knowledge. All interventions, using the socioecological model (SEM) as a framework, reported an increase in receipt or knowledge of cervical screening. Interventions at the individual, interpersonal, and organisational levels of the SEM included education, physical therapy, health assessment programs, provider accompaniment, and screening adaptations. There are interventions that have potential to address disparities in cervical screening for women with intellectual and developmental disabilities. More research would help identify which women would benefit from interventions.
Teachers' knowledge, belief, and experience regarding sex education for students with intellectual and developmental disabilities in China
Sex education is needed for improved mental and physical health and is a vital part of education for young people. However, sex education for students with intellectual and developmental disabilities is largely absent in China.
Fetal alcohol spectrum disorder (FASD): Comparing profiles of younger versus older adults
Fetal alcohol spectrum disorder (FASD) has implications for wellbeing across the lifespan. Research regarding adult profiles is limited.
Experiences and perspectives of professional caregivers on the transition of adults with intellectual and developmental disabilities: From the parental home to residential care facilities
Few studies have examined how professional caregivers perceive the relocation of adults with intellectual and developmental disabilities from the family home to specialised residential settings.
Family functioning as a mediator or moderator between child behavioural and emotional problems and maternal psychological distress
Mothers of children with intellectual disabilities are more likely to show elevated psychological distress, with child behavioural and emotional problems being a significant risk factor. Family Resilience Theory suggests that family relationships are crucial in influencing adaptation to stressors. We investigated whether family functioning mediates or moderates the relationship between child behavioural and emotional problems and subsequent maternal psychological distress.
Quality of life predictors for individuals with intellectual disability: Cross-sectional proxy-report data from a multicentre study
This research investigated quality of life (QoL) predictors in Spanish adults with intellectual and developmental disabilities. Individuals with high versus low-support intensity levels were compared.
(In)Accessibility of urban public transport and transport exclusion in Poland: Perspective of parents of persons with profound intellectual and multiple disabilities
This study focused on public transport accessibility as experienced by the parents of people with profound intellectual and multiple disabilities.
Postural control in adults with Down syndrome
Adults with Down syndrome present comorbidities that may worsen with age. Although falls are common in this population, postural control hasn't been clinically studied. This study aimed to assess postural control in adults with Down syndrome using Computerized Dynamic Posturography (CDP) and evaluate the role of sensory inputs.
Experiences of self-determination in old age among people with intellectual disabilities institutionalised in Chile: The right to decide does not age
The aging of people with intellectual disabilities constitutes a growing demographic phenomenon, yet it remains underexplored from a rights-based perspective. Understanding how self-determination is experienced in residential settings is fundamental for promoting dignified aging.
Effects of fully immersive virtual reality-based training on cognitive and motor functions in adults with intellectual disabilities
This study evaluated a 12-session fully immersive virtual reality (VR) training program for people with intellectual disabilities, assessing its effects on (i) non-practiced VR game performance, (ii) cognitive and neuromotor response times, and (iii) skill transfer to real-world tasks.
Development and validation of the AIDA scale: Anxiety in people with autism and intellectual disability assessment
Minimally verbal autistic people with intellectual disabilities are at risk of anxiety, yet remain underrepresented in research due to the lack of tools adapted to their functional profiles. This study aimed to develop and validate the AIDA Scale: Anxiety in People with Autism and Intellectual Disability Assessment.
The family quality of life survey-2006: an examination of relationships between objective and subjective data
Family quality of life (FQOL) includes objective and subjective factors representing wellbeing for families of individuals with intellectual and developmental disabilities. The current project investigated the integration of objective and subjective data using the Family Quality of Life Survey - 2006 (FQOLS-2006).
Construct validity of an adult pain observation scale for people with profound intellectual and multiple disabilities: The APOS-PIMD
Objective assessment of pain-related behaviours is crucial in adults with profound intellectual and multiple disabilities. No standardised pain observation instrument that specifically focuses on this target group is currently available. A previous study identified 12 pain-related behaviours in these persons. This study aimed to develop a valid and reliable instrument based on these 12 pain-related behaviours to assess pain in these adults in daily situations.
