End-of-Life Goals-of-Care in Adolescent and Young Adult Cancer Patients: A Systematic Review
Adolescents and young adult cancer patients (AYACP) with terminal diagnoses face the challenge and additional burden of planning their end-of-life (EoL) care. Although AYACP receive a standard-of-care at EoL, the care they receive may not align with their goals. As such, the characteristics of their goals-of-care are poorly understood.
Group-Based Support Interventions for Adolescents and Young Adults With Lymphoma: A Pilot Randomized Controlled Trial
Lymphomas are one of the primary cancers that affect adolescents and young adults (AYAs). We examined the feasibility of two group-based interventions-one meditation-based and one education-based-for AYAs with lymphoma. We also explored their potential benefits for reducing psychological distress and cancer-related symptom burden.
A Double-Blind Randomized Sham-Controlled Trial of Two Online Cognitive Bias Modification Interventions for Fear of Cancer Recurrence in People With Breast or Ovarian Cancer
In the context of cancer, pain demands interpretation. Our research has found that fear of cancer recurrence (FCR) is associated with the tendency to interpret ambiguous information as health-related. We aimed to determine whether we could modify these interpretation biases to improve FCR, and pain outcomes.
Feasibility and Acceptability of an 8-Week Supportive Care Intervention for Cancer Caregivers Adapted for Rural Settings
Rural residents are more likely to be caregivers and face significant burdens in caring for cancer patients. Rural caregivers can benefit from tailored interventions addressing their unique and complex needs.
Movement Behaviors and the Role of Self-Reported Symptoms and Well-Being: A Dynamic Structural Equation Modeling Approach Among Head and Neck Cancer Patients
This study aimed to identify individual variability in day-to-day physical activity (PA) and sedentary behavior (SB) as well as effects of pain, fatigue, and well-being among patients with head and neck cancer (pwHNC) on both movement behaviors.
Comparative Effects of Different Types of Exercise Interventions on Depression in Patients With Cancer: A Network Meta-Analysis of Randomized Controlled Studies
Depression is a common psychological disorder in patients with cancer. Exercise intervention has been demonstrated as an effective non-pharmacological intervention for improving depression. However, the relative efficacy of different types of exercise interventions remains uncertain.
SUN-SHINE Sarcoma Systematic Environmental Scan: Evaluation of the Readability, Understandability, and Actionability of Websites Supporting Patients Diagnosed With Sarcoma and Their Caregivers
Sarcoma is a rare cancer with complex treatment phases, leaving people with sarcoma and their carers with unmet information and support needs. This review provides an evaluation of sarcoma websites internationally to inform the development of online resources for the SUN-SHINE sarcoma project, aimed at addressing the unmet needs of people with a sarcoma diagnosis.
Preliminary Outcomes of a Culturally Adapted Fear of Recurrence Therapy (FORT) for Turkish Breast Cancer Survivors: A Randomized Controlled Trial
Fear of cancer recurrence (FCR) is a major psychological burden for breast cancer survivors, impairing daily functioning and quality of life. Fear of Recurrence Therapy (FORT), a cognitive-behavioral group intervention, has shown efficacy in Western settings. This study evaluated the effectiveness of an adapted FORT program in Turkish breast cancer survivors.
Parents' Perspective on Fertility Preservation of Adolescent Cancer Patients: A Meta-Synthesis of Qualitative Studies
This study aims to integrate existing qualitative research, consolidate the dynamic experiences of parents of adolescent cancer patients regarding fertility preservation (FP), and highlight the influencing factors of parents' decisions on FP.
Real-World Use, Effectiveness and Tolerability of Antidepressant Treatment in Oncology Patients
Depression significantly impacts quality of life and prognosis in subjects with cancer. Despite the evidence supporting the role of pharmacotherapy, real-world data on the effectiveness and tolerability of different antidepressant classes in cancer populations remain limited.
Information Needs in Patients Diagnosed With Haematological Malignancies: An Integrative Systematic Review
Cancer patients who receive the information that they need may experience better quality of life and emotional wellbeing, and be more equipped to engage in shared decision-making. Our review explores the information needs of haematological malignancy patients specifically, and their experience of the information process.
Psychological Empowerment Profiles in Breast Cancer Rehabilitation: A Multicenter Cross-Sectional Qualitative Study
This study identified psychological empowerment profiles of women with breast cancer to provide a clinical care framework.
Effects of Individualized High-Intensity Online Concurrent Exercise Guided by Autonomic Modulation on the Mental Health and Quality of Life of Breast Cancer Survivors
Exercise has been shown to improve mental well-being and health-related quality of life (HRQoL) in breast cancer survivors. However, there is no evidence on the effects of online interventions tailored using heart rate variability (HRV).
Attending Childhood Cancer Follow-Up Care: Travel Time, Disparities and Health-A Canadian Cohort Study
Despite the importance of follow-up care for childhood cancer survivors (CCS), adherence remains below recommended levels. Potential barriers include geographical distance. We aimed to improve our understanding of the accessibility of survivorship follow-up care at a Long Term Survivor Clinic (LTSC).
Online Health Information Seeking Before and After Oncology Consultations and its Impact on Patients' Anxiety and Uncertainty-A Longitudinal Questionnaire Study
Patients with cancer increasingly engage in online health information seeking (OHIS), yet the impact thereof on their anxiety and uncertainty remains unclear. This study aimed to: (1) examine how, when, and why patients engage in OHIS before and after oncological consultations; (2) identify patient characteristics (sociodemographic, medical, psychological) associated with OHIS; and (3) explore the relationship between OHIS, state anxiety, and uncertainty.
Professional Grief Among Psycho-Oncologists in Germany: A Cross-Sectional Survey Study
Professional grief refers to the emotional response healthcare professionals may experience following patient deaths. Although likely relevant in clinical practice, this phenomenon has been overlooked in research-particularly among psycho-oncologists. This study examined the emotional impact, coping strategies, and support needs related to professional grief in a German sample of psycho-oncologists.
Young and Middle-Aged Cancer Patients' Experiences and Perceptions of Meaning in Life: A Qualitative Study
Young and middle-aged cancer patients often face unique challenges, which may trigger their reflection and inquiry into the meaning in life. Patients from different cultural backgrounds and life stages may have varied experiences and perceptions of meaning in life, making it necessary to explore this further.
Attitudinal and Accessibility Barriers Predict Unmet Mental Health Care Needs in Distressed Cancer Patients and Survivors
Distress affects about one-third of people with cancer, yet many never want, seek, or receive mental health care. Identifying the barriers that distinguish those who obtain help from those who do not can guide service design in psychosocial oncology.
The Experience of Women With Breast or Gynecological Cancer After Participation in an Online Mindfulness-Based Cancer Recovery (e-MBCR) Program: Secondary Outcomes Analysis of a Pilot Mixed Methods Randomized Controlled Trial
Mindfulness-Based Interventions (MBIs) are recognized as beneficial in oncology supportive care. While qualitative analyses of mindfulness program experiences exist, this is the first mixed methods study to examine patients' experiences after participating in the online Mindfulness-Based Cancer Recovery (e-MBCR) program.
Gender Differences in Quality of Life and Psycho-Oncological Needs During the First Year After Melanoma Diagnosis
This study investigated the course of general well-being and health-related quality of life (HRQoL) in working-age melanoma patients during the first year following diagnosis. It also examines the use of psycho-oncological counseling and rehabilitation, and their impact on QoL.
Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study
Three subgroups of adolescent and young adult patients (AYAs; 18-39 at diagnosis) with an uncertain or poor cancer prognosis (UPCP-those diagnosed with advanced disease, who will likely die prematurely) were previously identified: those receiving traditional treatments (chemotherapy and/or radiotherapy), newer treatments (immunotherapy or targeted therapy), and patients with glioma. This study examines differences in health-related quality of life (HRQoL) among these subgroups, and comparisons between AYAs with a UPCP, recently diagnosed AYAs, and a healthy control group.
