This study used the Supportive Care Needs Framework (SCNF) to examine the psychological well-being of caregivers of children with dementia and their experiences navigating health and disability systems, including financial hardship.

In addition to the physical challenges of juvenile idiopathic arthritis (JIA), youth with JIA also experience a range of psychosocial sequalae, which requires further attention. This meta-analysis aimed to compare the psychosocial outcomes of youth with JIA to healthy peers and other illness groups.

This study examined parent-child agreement on psychopathology among children with chronic physical illness over 24 months and investigated whether parent psychological distress moderated associations between informant reports over time.

Relatively few published guidelines on models of care to address the mental health needs of caregivers of patients with chronic illnesses exist. The purpose of this article is to conduct a budget impact analysis to estimate the costs associated with the implementation of a Caregiver Mental Health Program (CMHP) within the pediatric oncology and bone marrow transplant divisions at an academic medical center.

To compare sleep and mental health outcomes in adolescents and young adults (AYA) with cystic fibrosis (CF) and healthy controls and to explore associations between sleep and mental health in CF.

Complex Care Programs (CCPs) provide care coordination and medical services to children with medical complexity (CMC), but no current tools measure the broad impact of these programs on caregivers and families. The Complex Care Program-Family Impact Questionnaire (CCP-FIQ) was developed to assess this impact.

Sickle cell disease (SCD) is an inherited blood disorder characterized by acute pain crises and heightened chronic pain prevalence. Approximately 30%-40% of pediatric patients with SCD have chronic pain, contributing to poorer psychosocial outcomes. Central sensitization (central nervous system hyperexcitability) may heighten chronic SCD pain, yet few investigations have examined factors related to central sensitization in pediatric SCD. Sleep has been identified as a modifiable factor that may influence central sensitization and contribute to pain outcomes in both chronic pain-free and clinical populations.

Supporting pediatric psychologists who identify as women in overcoming barriers to scientific writing is critical for the career development and advancement of pediatric psychology science priorities of the Society of Pediatric Psychology 2022-2026 Strategic Plan. The purpose of this topical review is to introduce structured writing retreats as a promising strategy for supporting scientific writing among pediatric psychologists.

Although sleep disturbances are common and impairing side effects of treatment for pediatric acute lymphoblastic leukemia (ALL), no research has studied whether prevention programs are effective. The current study assessed feasibility and acceptability of a brief sleep health education program during maintenance chemotherapy for ALL.

Parents of children with immunoglobulin E (IgE)-mediated food allergies (FA) at risk of anaphylaxis may experience an increased psychosocial burden. Thus, integrating psychosocial support for parents into FA management is essential. Previous psychosocial interventions have demonstrated positive effects for caregivers of children with FA. This study aimed to implement a comprehensive online pilot program for caregivers of children aged 2-8 years diagnosed with FA that carries a risk of anaphylaxis. The primary objectives related to the intervention were to assess quantitative changes in FA-specific parental self-efficacy and burden, stress, and well-being; explore qualitatively the parents' experiences; and evaluate overall impressions.

Increasing numbers of caregivers in the United States face challenges caring for children with special health care needs. Research has identified unique challenges for caregivers, including limited resources and mental health issues. Caregiver burden involves various strains from the ongoing care of a loved one. This scoping review explored the emotional, financial, physical, and social dimensions of burden among caregivers of children with multiple conditions. It also examined study characteristics, measurement tools, and associations among constructs.

The aim of this study was to examine the direct and interactive effects of cognitive and family factors on psychosocial, academic, and adaptive functioning outcomes in youth with spina bifida (SB).

This systematic review (PROSPERO ID: CRD42022356654, AMNR junior research grant) evaluated the effectiveness of parenting interventions in pediatric type 1 diabetes, designed to enhance supportive parenting behaviors, in improving family dynamics, parent-, child-, and diabetes-related outcomes.

This study describes adolescent and young adult (AYA) cancer survivors' self-image, including the role of social media, in the context of social interaction. More specifically, this study describes how survivors view their physical appearance, personality, and capabilities throughout their cancer experience.

Adolescents with chronic health conditions (CCs) face unique developmental challenges that affect their psychological well-being. Benefit-finding and growth (BFG) may serve as a psychological resource for this population. However, longitudinal evidence on the hypothesized predictors of BFG and its impact on subjective well-being (SWB) remains scarce. This study explores the reciprocal associations between emotion-focused coping, BFG, and SWB in adolescents with CCs.

Type 1 diabetes (T1D) and life-threatening food allergies (FAs) are two diet-dependent chronic illnesses (DDCIs) that require rigorous self-management centered on strict dietary monitoring. Grounded in self-determination theory, this study aimed to investigate differences in motivation for healthy eating and well-being among adolescents coping with DDCI, compared to individuals without DDCI. Additionally, it explored the mediating role of general health practices in the relationship between motivation for healthy eating and well-being.

Caregiver-child relationships are closely related to early childhood development outcomes. This study explores the association between child sleep patterns and the caregiver-child relationship in rural China and the mediating role of caregiver depression.

To gather parents' perspectives on the experiences of siblings of young children with congenital heart disease (CHD), the impact of CHD on siblings, and the types of resources and supports they need to adjust to CHD within their family.