Correction: The PROMIS-16 reproduces the PROMIS-29 physical and mental health summary scores accurately in a probability-based internet panel
The next chapter of Quality of Life Research: an update from the editors
Correction: Health-related quality of life among multiethnic public polyclinic users in Singapore and associated factors: a cross-sectional study
Measuring inequality in quality of life: Why the EQ-5D may underestimate it
The EQ-5D is increasingly being used in studies of health inequalities, providing further evidence of a social gradient in health; i.e. consistent positive associations between a socioeconomic indicator and health. However, the steepness in the social gradients in HRQoL differs depending on which of the two EQ-5D measures is used; whether based on respondents' EQ-5D-5L descriptions or by their direct valuation in EQ-VAS. This study aims to provide new knowledge as to why the two HRQoL measures suggest different degrees of health inequalities.
Design and implementation of data quality controls in the EQ-DAPHNIE study: insights from the pilot phase and 15-country analysis
The EQ-DAPHNIE (EuroQol Data for Assessment of Population Health Needs and Instrument Evaluation) project is a large, multi-country survey initiative designed to generate population norms and enable comparative research using self-reported health measures. This paper describes the quality control processes and summarizes data quality metrics from the United Kingdom (UK) pilot and full implementation across 15 countries.
Health-related quality of life among anaplastic lymphoma kinase (ALK)-positive non-small cell lung cancer (NSCLC) patients treated with first- and next-generation ALK tyrosine kinase inhibitors (TKIs): a systematic review and meta-analysis
To assess the possible effect of anaplastic lymphoma kinase (ALK) tyrosine kinase inhibitors (TKIs) on the health-related quality of life (HRQoL) in patients with ALK-positive non-small cell lung cancer (NSCLC).
Trajectories of device-assessed physical activity and sleep in ICU- and non-ICU-treated patients up to 2 years after hospitalization for COVID-19, and their association with health-related quality of life
Severe COVID-19 may have lasting effects on physical and sleep behaviors, which could affect health-related quality of life (HRQoL). This study aimed to assess 2-year trajectories of device-assessed physical and sleep behaviors post-hospitalization, comparing ICU- and non-ICU-treated patients, and to assess their association with HRQoL.
Profiles of HIV/AIDS stigma and psychological well-being in relation to embodiment among people living with HIV
This study aimed to examine how profiles of perceived HIV/AIDS stigma and psychological well-being (PWB)-defined by positive/negative affect, life satisfaction, and health-related quality of life-relate to embodiment among people living with HIV (PLWH). It also explored the role of minority stress, particularly among sexual minorities, in shaping these experiences.
EQ-5D-5L Iranian population norms derived from the local value set during the COVID-19 pandemic
To derive the first population norms from the EQ-5D-5L in Iran during the COVID-19 pandemic.
Differences in rating of health related quality of life on the EQ-5D-5 L between ethnic groups
To examine whether ratings on each of the five dimensions of the EQ-5D-5L vary across ethnic groups after adjusting for health conditions and other relevant covariates.
Quality of life in nasopharyngeal carcinoma survivors: a systematic review and meta-analysis of longitudinal outcomes
Despite advances in treatment, many nasopharyngeal carcinoma (NPC) survivors face substantial and enduring quality of life (QOL) impairments. This systematic review and meta-analysis aims to explore trends and factors influencing QOL in NPC patients across various treatment modalities over time, to inform patient-centered care strategies.
Defining critical symptom parameters for an ePRO-based management pathway during systemic treatment for advanced upper gastrointestinal cancer: a longitudinal study
Establishing a care pathway based on electronic patient-reported outcomes (ePROs) is necessary to effectively assess and manage outpatients undergoing active treatment. This study investigated symptom burden in patients with advanced upper gastrointestinal (UGI) cancer and the characteristics needed for implementing an ePRO system to monitor these patients.
Reducing patient burden of PROMs in healthcare through advanced computerized adaptive testing stopping rules
Application of computerized adaptive testing (CAT) can improve the assessment of patient-reported health outcomes by reducing patient burden. We aimed to reduce patient burden of CATs further by optimizing a standard error reduction stopping rule (SER; minimum change in SE(θ) after each CAT step).
Validity, reliability, and responsiveness of the EQ-5D in diseases of the upper respiratory tract: a systematic review of measurement properties
This study aimed to conduct a systematic review of the published evidence regarding the measurement properties of the EQ-5D (EQ-5D-3L and EQ-5D-5L) in patients with upper respiratory tract diseases, encompassing conditions associated with the nose, pharynx, and larynx.
Health-related quality of life of adult post COVID-19 condition patients three years after infection and patient characteristics associated with change over time: a longitudinal analysis from the CORFU study
Post COVID-19 Condition (PCC) negatively impacts Health Related Quality of Life (HRQoL) and can persist for years after initial infection. This study examined long term HRQoL of COVID-19 survivors with PCC to explore whether and how HRQoL changes over time, and to determine which patient characteristics are associated with changes.
Quality of life measures in treatment for active substance misuse: a scoping review
Unlike previous reviews on quality of life (QoL) and substance use disorders (SUD), this scoping review focuses on QoL within the context of SUD treatment and active substance misuse. This review delineates and describes QoL measures, assesses their application, and explores the influence of demographics on QoL outcomes.
Quality of care experience- aged care consumers (QCE-ACC) in residential aged care: an assessment of construct validity
Providing quality care for older people continues to be a significant challenge globally and in Australia. The Quality-of-Care Experience - Aged Care Consumers (QCE-ACC) has been adopted as a key quality indicator in the national aged care quality indicator program in Australia for public reporting of care quality variation across residential aged care facilities. This study aims to provide further evidence of the construct validity of QCE-ACC among older people living in residential aged care facilities.
Comparative analysis of pediatric depression measures in clinical sample: evaluation of the PROMIS pediatric depression short form
Examine the psychometric properties of the PROMIS Depression Short From 2.0 (PROMIS-D-SF), Caregiver and Youth Report in comparison with a legacy measure of depression, the Short Mood and Feelings Questionnaire, using a clinical sample.
Mapping the modified rankin scale (mRS) onto the assessment of quality of life (AQoL) utilities
Economic evaluations need data from preference-based measures (PBM) to calculate quality-adjusted life years (QALY). Clinical trials often do not collect this data, which has prompted the development of mapping techniques. One such utility instrument to measure quality of life is the Assessment of Quality of Life-4D(AQoL-4D) and a widely used measure to assess global disability in stroke trials is the modified Rankin Scale (mRS). Thus, mapping techniques to link the mRS score with a health-related quality of life (HRQoL) such as AQoL-4D, is useful for health economists working in stroke.
Developing a patient-based utility value set for the EORTC QLU-C10D using the OPUF method in Chinese cancer patients
Adaptation of the Good Spirit, Good Life quality of life tool for remote Indigenous Australians
The Good Spirit, Good Life (GSGL) assessment tool was co-developed in urban and regional Australia to address quality of life (QoL) for older Aboriginal and Torres Strait Islander peoples and inform culturally responsive care. This study aimed to determine the acceptability and validity of the GSGL tool in Australian remote settings.
