DISABILITY AND REHABILITATION

A thematic synthesis of parents'/carers' perspectives regarding the development and content of interventions aimed at supporting children and young people with acquired brain injury and their families
Spencer D, Whiffin CJ and Gracey F
This review aims to synthesise published evidence on parents'/carers' perspectives regarding the development and content of interventions for children and young people (CYP) with acquired brain injury (ABI) and their families.
"Double Wahala for dead body …" - perspectives of service providers about adherence to antiretroviral therapy among persons with disabilities living with HIV in Nigeria
Philip AA, King J, Durham J and Mullens A
This study explores service providers' perspectives on factors limiting ART adherence among persons with disabilities living with HIV in Nigeria (PWDLWHIV). It argues that adherence is hindered by stigma, prejudiced views from service providers, and insufficient tailored programming for PWDLWHIV in the HIV response.
Critical appraisal of pediatric pain education materials and the integration of lifestyle factors: a scoping review
Betting K, Laekeman M, De Kooning M and Carvalho GF
Children and adolescents with chronic pain experience lasting impacts on quality of life, often persisting into adulthood. Inadequate lifestyle factors (LSFs) such as physical inactivity, stress, poor sleep, and unhealthy nutrition can worsen pain severity. This scoping review assesses the extent to which LSFs are addressed in pediatric pain education materials and provides recommendations.
Comparing the outcomes of a prosthetic intervention from the perspective of Australian prosthesis users and funders
Dillon MP, Ridgewell E, Tse T and Clarke L
Little is known about the perspectives of prosthesis users and funders regarding the outcomes that are most important when receiving/funding a lower-limb prosthetic intervention.
"I wanna just not go, because maybe I'm sad" - views on depression from the perspective of people with aphasia, their care partners, and speech-language pathologists
Siegle E, Shankman SA, Reddy M, Griffith JW and Ashaie SA
People with stroke aphasia are often excluded from studies of depression because of their language difficulties. Research on individuals without aphasia suggests that different individuals' experiences with depression can impact their depression management. We conducted a qualitative study to explore experiences with depression as viewed by people with aphasia, their care partners, and speech-language pathologists (SLPs).
The lived experiences of stigma among stroke survivors in a peer group
Bracho MJ, Salas C, Ayden J and Gracey F
This qualitative study explored how participation in a peer support group influences the internalization of stigma, stigma management, and social identity among people with brain injury.
Effectiveness of telerehabilitation on motor and respiratory function in duchenne muscular dystrophy: a systematic review and meta-analysis
Vinolo-Gil MJ, Muñoz-Pérez L, Dominguez-Vera PA, García-Campanario I, Estebánez-Pérez MJ and Martín-Valero R
Duchenne muscular dystrophy (DMD) is a progressive neuromuscular disorder causing muscle degeneration, mobility loss, and respiratory decline. Telerehabilitation (TR) may improve access to physiotherapy.
A qualitative exploration of perceived barriers, facilitators and preferences of early mobilisation after aneurysmal subarachnoid haemorrhage
Hernandez S, da Silva A, Tipping C, Deane A, Levy C and Hodgson C
To determine the barriers, enablers and preferences for engagement in early mobilisation from the perspective of aneurysmal subarachnoid haemorrhage (aSAH) survivors in acute and intensive care settings.
The experience of loneliness in adults with acquired brain injury: a qualitative systematic review
Muir-Little A, Berry E, Rauch R and Graham-Wisener L
Loneliness is a long-term concern in populations with acquired brain injury (ABI). There lacks a consensus on conceptualisation of loneliness and factors contributing to it following brain injury. This systematic review aimed to provide the first comprehensive understanding of loneliness in brain injury, grounded in the lived experience of survivors.
Reablement for people with cognitive impairment or dementia living in the community: current approach to practice and practitioner-led targets for practice change through audit and feedback
O'Connor CMC, Houlden S, Poulos CJ, Kurrle S and Anstey KJ
To explore (1) current reablement practice for community-dwelling people living with cognitive impairment or dementia, and (2) allied health practitioner perspectives around implementing reablement.
"You can't change the ABI": practitioner insight into the rehabilitation of health and social needs associated with aggression after acquired brain injury
Guala T, Harries T, de Andrade D, Miller P, Langbein A, Hill H and Curtis A
Aggression and offending can be common after Acquired Brain Injury (ABI). This may be partly attributed to ineffective community-based rehabilitation for health and social needs related to these behaviours. As practitioner perspectives can elucidate the realities of service provision and barriers in rehabilitation, the aim of this study was to explore their perspectives on the effectiveness of rehabilitation for persons with ABI.
Rehabilitation providers' experiences with long COVID care in Canada: a qualitative study
Leighton J, Heldmann I, Van de Ven K, Reis L, Vijayakumar A, Simpson R, Nelson M, Sheppard C, Robinson LL, Steinberg R, Nguyen M, Bayley M, Daneman N, Levy C, Ho C, Goulding S, Hitzig SL and Wasilewski MB
To examine the experiences, challenges, and recommendations of Canadian Rehabilitation Providers delivering care to people with Long COVID (PWLC), with the goal of informing best practices and guiding service and policy improvements.
Impact of an intensive, multidisciplinary rehabilitation program on postural control and disability in persistent postural perceptual dizziness patients. A retrospective study
Le Perf G, Auger P, Cauquil-Gleizes S and Thebault G
Persistent Postural Perceptual Dizziness (PPPD) is a functional neurologic disorder requiring a multidisciplinary approach combining education, vestibular and physical rehabilitation, cognitive-behavioral strategies, and relaxation. Coordinating such interventions in outpatient care is challenging. This study evaluated whether a short, intensive inpatient rehabilitation program could improve postural control, mobility, and disability in PPPD.
Effects of interventions on sedentary behaviour and cardiovascular disease biomarkers in individuals with spinal cord injury: a systematic review
Cooper DL, Warland A, Norris E, Kilbride C, Paddison S and Bailey DP
Reducing sedentary behaviour may be an intervention target to improve cardiovascular health in individuals with spinal cord injury. The aim of this study was to systematically review the effects of interventions on sedentary behaviour and cardiovascular disease biomarkers in individuals with paraplegia.
"The whole thing is just really difficult": experiences of dental services for children and adults with cerebral palsy in Australia-a qualitative study
Lansdown K, Smithers-Sheedy H, Bulkeley K, Zagreanu C, Irving M and McGrath M
People with cerebral palsy (CP) often experience significant barriers to accessing dental care, yet this area remains under researched in Australia. This study explored how people with CP and their caregivers experience dental services in Australia.
"": narratives of family identity after acquired brain injury
Culley S, Byrne F, da Silva Ramos S and Frith H
Acquired brain injury (ABI) profoundly impacts the whole family. This study explores family identity using a relational, strengths-focused framework to understand how families navigate ABI together.
A scoping review of safer mobility behaviour assessment and intervention: implications for people with Parkinson's disease
Cheung D, Wesson J, Paul SS, Mackenzie L, Goh L, Canning CG, Almeida LRS, Enright M and Allen NE
To provide a summary of assessments and interventions used to target safer mobility behaviour for fall prevention in older adults and people with Parkinson's disease (PwPD).
Barriers to accessing stroke rehabilitation and initiatives to enhance access to stroke rehabilitation in Southeast Asia: a scoping review
Mtambo ML, Ling J, Mohan D, Warren N, Su TT and Quek KF
To identify barriers to, and initiatives for, access to stroke rehabilitation in Southeast Asia (SEA).
A mindful parenting program for self-care co-occupation of autistic children on parental outcomes: a feasibility pilot randomized clinical trial
Saei S, Alizadeh Zarei M, Hassani Mehraban A, Karamali Esmaili S, Kashefimehr B and Abolghasemi J
This pilot randomized clinical trial (RCT) evaluated the feasibility and exploratory effects of a mindful parenting participation program integrated into occupational therapy (OT) to enhance parental engagement in the self-care co-occupation of autistic children.
Development of an optimized framework for delivery of and adherence to exercise-based care for persons with subacromial pain syndrome
Poulsen LK, Clausen MB, Mørkeberg CJPWS and Kirk JW
Subacromial pain syndrome (SAPS) is a common musculoskeletal condition compromising physical function. Exercise-based care is first-line treatment, but adherence is compromised. This calls for action to optimize the context for clinical pathways to enhance adherence.
Experiences of decisional conflict in parents offered hip reconstructive surgery for their child with cerebral palsy
Medeiros C, Metcalfe K, Narayanan U and Widger K
Using a mixed methods study to explore the level of parents' decisional conflict and decision-making experiences when offered hip surgery for their child with non-ambulant cerebral palsy (CP).