Effectiveness of Mindfulness-Based Interventions on Breathlessness in Lung Cancer: A Meta-Analysis
. Breathlessness is the most common and distressing symptom in lung cancer, but no systematic review has examined the effectiveness of mindfulness-based interventions on breathlessness.
Pharmacotherapy for Chronic & Intractable Hiccups in Palliative Care: A Mixed Methods Systematic & Umbrella Review
Chronic and intractable hiccups are a debilitating symptom in palliative care, yet the evidence for their pharmacological management is sparse and of low certainty, as certain study designs are frequently excluded from traditional systematic reviews.
Symptom Relief from Tub Bathing in Terminal Cancer: A Multicenter, Controlled Observational Study
Previous studies have shown that bathing of terminal cancer patients led to significant immediate improvements in symptoms, but the earlier work had various limitations.
The Journey of a Communication Skills Educator: Motivating Factors for Commitment and Sustainability
Communication is critical to improving patient and family outcomes, yet clinicians remain undertrained. Effective communication training takes significant investments in personnel and programming. Little is known about what motivates and sustains clinician educators in such programs.
Methylphenidate for Depression in Advanced Cancer:Exploratory Meta-Analysis of Randomized Trials
Depression is prevalent and often undertreated in people living with advanced cancer. Methylphenidate (MPH) has been proposed as a faster-acting pharmacologic intervention in this setting, yet evidence remains limited.
Palliative care in low and middle-income countries to reduce cancer suffering: A systematic review
In low- and middle-income countries, the incidence of cancer is rising, with diagnoses frequently made at advanced stages, limited access to treatments, and high mortality rates. Palliative care may alleviate suffering, enhance quality of life, and reduce costs. In this review, we aimed to explore the development of palliative care in low- and middle-income settings and assess if and how this contributes to mitigating or alleviating the human suffering of people with cancer.
The Pediatric Cancer Care Experience (PACE) Questionnaire: Development and Validation of a Novel Instrument
Patient-reported experience and outcome measures are crucial tools for assessing care quality. However, a critical gap exists in validated family-reported tools for the pediatric advanced cancer context.
Staying Connected: A Longitudinal, Multisite, Interprofessional Rural Fellowship Collaboration
Four interprofessional hospice and palliative medicine (HPM) fellowship programs in rural northern New England states created an in-person educational retreat series.
Mean Differences and Standard Mean Difference: Important Differences in Quality of Life
The Child Life Imperative in Adult Palliative Care
Palliative care, whether in the form of early Supportive Palliative Care or later in the course of illness with Hospice, serves not only the seriously ill patient, but the patient's family members. When the family includes children associated with the seriously ill patient, the needs of those children often go unmet, especially in adult palliative care. This paper focuses on the work done and the methods used by Certified Child Life Specialists working in adult palliative care. Using the literature and our 15+ year experience integrating Child Life Services into both community and academic center Supportive Palliative Care services, we argue it is imperative that the core adult palliative care interdisciplinary team include Certified Child Life Specialists trained to help children of the seriously ill adult understand their loved adult's illness, and to help adults communicate effectively with and better support the child.
How Clinicians Prenatally Discuss Management Options and Outcomes for Congenital Heart Disease
A prenatal diagnosis of complex congenital heart disease (cCHD) introduces significant emotional, social, and financial stress for families. Uncertainty about the future is a central source of distress for parents, particularly surrounding management options and anticipated outcomes. Little is known about how fetal cardiologists present management options, address anticipated outcomes, and offer supportive services.
Ideal Timing and Perceived Barriers for Palliative Care Integration for Children with Cancer in China
Pediatric palliative care (PPC) for children with cancer can improve the quality of life for patients and their families, but barriers impede the early integration of PPC for many patients.
Early specialised palliative care for unresectable pancreatic cancer - a quasi-experimental study
Patients with unresectable pancreatic cancer have a poor prognosis and often high health care requirements.
Discordance in ratings of symptoms experienced by nursing home residents with cognitive impairment
Evaluation of palliative care programs in nursing homes often includes symptom assessments. For residents with cognitive impairment, proxy symptom reports, such as those from family members or nursing home staff, may be used as outcome measures.
Beyond the Label: How Naming and Framing Impact Pediatric Palliative Care Acceptance
Pediatric palliative care (PPC) underutilization persists despite proven benefits. Some barriers stem from the misconception that PPC is exclusively for end-of-life, causing parental distress and reticence to engage. This study explores the origins of these misconceptions to enable smoother introduction of this helpful service line.
Patient Access to Opioids for Pain Management in SEA with a Focus on Timor-Leste: A Scoping Review
The majority of the world's population, including the Southeast Asia region, needs legitimate access to opioids, for the treatment of moderate to severe pain. The escalating incidence of cancer in Timor-Leste, the newest nation in the region, presents a significant challenge to healthcare systems particularly in pain management.
Provider Perspectives on Palliative and Complex Care Team Collaboration
Pediatric palliative care and complex care programs frequently collaborate when caring for a shared population of children with medical complexity (CMC), despite programmatic heterogeneity across institutions. Yet, scant literature exists documenting the nature of collaboration between these subspecialties.
Safely Easing Pain in Home Hospice Patients With Opioid Infusions: A Quality Improvement Project
Opioid infusions are critical for managing pain in home hospice care but carry a high risk of medication errors. This quality improvement (QI) project evaluated adherence to a standardized PCA opioid infusion procedure and examined whether a nurse education intervention improved compliance.
Validation of a Claims-Based Algorithm for Specialist Palliative Care Delivery in Metastatic Cancer
The lack of valid methods to identify specialist palliative care (PC) delivery in population-level data impedes comprehensive understanding of its use.
Implementing Pediatric Palliative Care in Vietnam: Initial Experiences and Lessons
There remains an enormous unmet need for pediatric palliative care (PPC), especially in low- and middle-income countries (LMICs). Evaluation of existing PPC programs can inform development of emerging programs. In 2017, a PPC program was established at a major children's hospital in Vietnam, a lower-middle-income country where palliative care development is at an early stage.
Hospice and Palliative Medicine Fellows' Perspectives on Physician-Assisted Dying Education: Hospice and Palliative Medicine Fellows' Perspectives on Physician-Assisted Dying
Physician-Assisted Dying (PAD) is legal in a growing number of U.S. states, with access expanding nationally due to recent legislative changes. Despite this, how to address PAD in hospice and palliative medicine (HPM) fellowship programs remains undefined. The perspectives of HPM fellows regarding PAD education have not been studied.
